Privacy Policy
Effective Date: May 01, 2026
raredisease.site provides informational content related to Rare diseases & diagnostic informatics and is committed to being transparent about how visitor data is handled. Our site serves medical researchers, healthcare professionals, patients, and families seeking reliable information about complex medical conditions. This privacy policy explains how we collect, use, and protect the information gathered through our platform.
Information We Collect
When you visit raredisease.site, we automatically collect certain technical information including your IP address, browser type, device characteristics, and browsing patterns. This data helps us understand how users interact with our diagnostic informatics content, diagnose technical issues, and improve site performance. When you voluntarily submit information through contact forms or newsletter signups, we collect your email address, name, and any additional details you choose to share.
How We Use Your Information
The information we collect serves several critical purposes. Technical data helps us optimize site functionality and create a seamless user experience. Contact information allows us to respond to specific inquiries about rare disease resources, research updates, or technical support. We analyze aggregate browsing patterns to understand which medical topics and diagnostic resources are most valuable to our audience. Importantly, we do not sell or share personal data with unaffiliated third parties for their independent use.
Cookies and Tracking Technologies
Cookies are small text files stored on your device that help websites remember your preferences and track site interactions. Our site uses first-party cookies for analytics and site functionality, enabling us to understand user engagement and improve content. Third-party cookies may also be used for advertising and performance tracking. Most browsers allow you to manage or disable cookies, though this might limit some site features.
Google AdSense and Third-Party Advertising
Google serves advertisements on our platform using the DoubleClick cookie. These ads are personalized based on your browsing history across various websites. Advertisements help support our ability to provide free, high-quality medical information. Users can manage their ad preferences and opt-out of personalized advertising at adssettings.google.com.
Links to Third-Party Websites
Our site may contain links to external medical resources, research institutions, and healthcare platforms. While we carefully curate these links, we cannot guarantee their privacy practices. We recommend reviewing the privacy policies of any linked sites before sharing personal information.
Data Security
We implement industry-standard security protocols to protect collected information from unauthorized access, disclosure, alteration, or destruction. This includes encrypted connections, secure server environments, and regular security audits. However, no online transmission is completely guaranteed, and users should exercise caution when sharing sensitive information.
Your Privacy Choices
You have several options for managing your privacy. Most browsers allow you to adjust cookie settings, disable tracking, or browse in private mode. For specific privacy requests, data corrections, or questions, contact our support team at support@raredisease.site. Additionally, you can manage Google ad preferences at adssettings.google.com.
Children's Privacy
Our site is not intended for children under 13 and does not knowingly collect personal information from minors. Parents or guardians concerned about potential data collection should contact our support team.
Changes to This Policy
Privacy practices evolve with technological and regulatory changes. We may update this policy periodically and will publish the most current version on our website. Continued site usage after policy modifications constitutes acceptance of those changes.
Contact Us
For any privacy-related inquiries, requests, or concerns, please contact our dedicated support team at support@raredisease.site. We are committed to addressing your questions promptly and transparently.